Diagnosis

I have really struggled as what to post on Hayden. But, we are in the process of receiving different diagnosis' back on him.

I want to start by saying, I love my boy, all of us uniqueness and all of his little quirks. They are so endearing to me. I wouldn't trade him for a million other kids. I would choose him, even with his challenges.

Hayden was born to this earth with challenges. Poor kid, started out with medical issues, all health related. Since then, he has struggled in meeting his developmental milestones. Some say because of the medical, some maybe because of the meds, or whatever. It is what it is.

In addition to struggling with his cardiac and nuerological issues, he now will have to deal with autism, specifically PDD-NOS, which he is on the Autism spectrum. He also has several other challenges, particularly sensory processing disorder, low/no muscule tone effecting fine & gross motor skills, and others.

So, my big question in this is where do I go from here? I want to get him all the help he needs, without "labeling" him but doing the most good for him. Challenges to that, they played off most of his delays due to health issues when he was young. Granted, the doctors main focus to keep Hayden alive, yet they missed key factors in diagnosing and treating him young. With all of the budget cuts lately, I am being given two options. His diagnosis qualifies him for treatment, but he is surpassing levels for help, so I can back off treatments and DDD will pick him up, once he gets any worse. Or, we move forward, with the diagnosis without any help, because we have already helped him so much. Oh, the decisions. I think we will continue to do self-pay as long as we are able, but oh is it expensive. Oh the politics of it all, that part drives me crazy. It is discouraging to hear that we have done too much for him.

So, my little Haydi bug has his challenges cut out for him for sure. But, you couldn't ask for a more loving, Christlike little boy. In someways he is so beyond his years. I am so thankful for him and to a loving Heavenly Father that obviously puts a lot of trust into me. I don't feel like I am fit for the challenge somedays, but I have learned that those the Lord entrusts he also prepares a way for. So, I keep praying that I will know what to do to help my sweet boy. Thanks for all the encouraging words from so many of you while I have spent the last year of my life at tons of different doctors, trying to sort thru all of this medical and diagnostic red tape.