Saturday, May 3, 2008

Sensory Processing Disorder

If you are like me, you have probably never heard of this disorder. Up until a week ago, I had never heard of this nor knew what it meant. Life is funny. One week you don't know a term and a week later, you feel like you have read more on the subject than ever imaginable. This is what has been going on over the past week of my life. I have been absorbed in reading books, searching the internet and talking to all kinds of specialists about sensory processing disorder. I have been frantically searching for answers, occupational and physical therapists and working with Hayden's school.

Hayden is in the process of being diagnosed with this disorder, as well as some other things. I was actually a little relieved with the diagnosis, compared to what it could have been. Hayden has sensory issues. I always knew this. He hates loud noises; don't even try flushing a public toilet when he is around. He is very sensitive to smells, touch, taste and sounds. The more people and noise, the more frazzled he gets. I didn't think it was all that big of deal, because I have never been one for large groups, I've always preferred smaller gatherings. This is more than a preference for Hayden, he simply cannot handle too many sensory inputs at one time. It is all very overwhelming to him.

I always knew Hayden was really smart, who doesn't think that about their kids. Well, now I have IQ tests and all kinds of documentation to prove this. Hayden intellectually is very intelligent but has problem with his motor skills. His brain can't make his hands do what his wants them to. He has been really frustrated in school because he knows the answers but can't always write them. And yes, they do think that all of this stems back to all of his problems at birth with his heart.

We are still searching for answers, searching for occupational therapists and doctors. This will be a process and a long road. Although, I have heard it is possible, it will be a process trying to "re-wire" Hayden's brain to use his hands correctly. We will be spending quite a bit of time in occupational and physical therapy to work with his fine and gross motor skills. And learning how to deal with sensory processing disorder.

Why am I sharing this? This is my life. This is our new road we will be walking down. Hopefully, as I find answers, I will be able to share them with other parents who are going through the same ordeal. This will probably be my way to vent and to get out my frustrations, but also to share in our triumphs and findings.

Hayden is such a great boy! I feel so grateful to be his mother. He is so sensitive and sweet. He has had to overcome some real hardships in his young life but I know that the Lord is preparing him for great things. I am deeply humbled that I was chosen to be his mother.

3 comments:

Laura Davis said...

Hey Jer, I am so sorry to hear this. Hayden is such a sweet little boy and strng too I know he will overcome this. My mom wants you to know that she knows some really good occupational therapists, A friend of hers' son had a stroke and someother things andso he has been working with mulitple people for the last couple of years. If you want I can get the info from them. We love you guys and want you to know we would love to help in any way.

Anonymous said...

Good for you for seeking a diagnosis while he is so young. Many parents wouldn't be so in tune. Just think how even more brilliant he will be once he makes that connection!
I'm with you, I don't like loud, large gatherings either.

Keep us posted.

Bob and Danya said...

Well, there's big curveball for ya! I don't think I would have ever guessed that this was an issue. Of course we don't see Hayden nearly as much as we used to, but I have never noticed any problems. Maybe he's already learned to compensate for some of them. Well I hope you can find the help you need. Hayden is destined for great things. This is just one of the many battles in his life. He's already overcome so much I know he'll fight this one head on! You are always in our prayers Hayden! Love, Paxmans