Wednesday, February 17, 2010

Immunodeficiency Disorder

Here we go again! More tests. More diagnosis'. More time in hospitals, ER's and urgent cares.
The good news, hopefully, they have some of this stuff figured out. As I try hard to wait on doctors, I find myself getting overly impatient. I know, to them, Hayden is just another patient, just another set of test results, just another child fighting for their life. But to me, he is MY child. He is MY world. He is MY life. And, I feel like the doctors could respond a little quicker, and try a little harder to explain the results that to us feel like the world has just changed, again.
From what I understand, Hayden has some immune disorder. Okay, never thought of it. Didn't know there was an immunologist, but it makes sense. He is ALWAYS sick. He catches EVERYTHING. And, he keeps getting the same thing over and over again ie: his third strep infection in the past month.
I guess Hayden doesn't have the ability to make antibiodies. He can't fight infection. And, only a portion of what medication he is given is even assimulated into his little system. Beyond that, we are waiting on results to see how serious and how extreme the diagnosis and therefore the treatments are going to take us.
What we do know is monthly IV treatments are in his near future. He was NOT happy about that. Then, I explained that he has missed 7 days of school this month due to strep. If we start these treatments, he would have missed part of a day of school to get the IV's, but wouldn't have missed school, the field trip, science fair, birthday party and his friends. He is signed up.
I am so amazed with my boy. I realize he is growing up, but the last couple of weeks, I have watched my eight year old son, comfort me, strengthen me and reassure me. We explained to him how much I wish this wasn't how it had to be, I wish it could be me. But, that we are thrilled that they have a solution to make him healthier. My son, and his AMAZING attitude toward life. He has thanked his Heavenly Father for helping the doctors to figure it out so he can be healthier and stronger. He has taken on the attitude of, "It could be worse. I am just going to have to learn to deal with needles. I guess this gives me more of a reason to invent more J-tip shots and iv's without needles." He even said, "Maybe Heavenly Father gave me this body so I could help other kids that are sick not be in so much pain!" I am so thankful for an 8 year old that has helped humble me, helped me change my perspective and help me to be a better, more positive person. And, like Hayden, I am now actually thankful for this newest chapter in our lives. Hayden's right, the Lord isn't going to give up on him now. We are expecting more miracles at the Murphy house.

1 comment:

Jodi Davis said...

Hayden is a great example to all of us. And you guys are amazing parents!