August was spent in doctors multiple times a week. I'm grateful for Dr Levine, my neurologist. He has referred me to an incredible pulmanologist, Dr. Cameron Dick and a great gastroenterologist, Dr. Darrell Wadas.
I have had sleep studies, overnight oximetry tests, X-rays, breathing tests, tons of gi tests and surgery. I've endured spinal taps and biopsies and more tests than I rememeber.
2 weeks ago, I had surgery. Dr Wadas did an upper and lower endoscopy, and a colonoscopy. He dilated my esophagus, removed some paralysis within my esphogus, repaired tears and did biopsies. The dr was convinced it was cancer. We were thrilled when the biopsies came back negative.
However, the surgeon is putting me back in the hospital next Friday for more tests. They believe I have a paralyzed esophagus system. I will have motility studies and more. Oh joy.
After the surgery, I spoke with my neurologist. He questioned how much extreme pain I was in. He referred me to his in house pain specialist. I was told I had to get the pain under control as it is killing me. Literally. My nerves firing is eating me alive. So to try to ease the nerve pain, may actually stop the rapid progressing of this disease. So we are in major medication changes and major trying to control the pain.
A week ago, I went to the new dr to try and get the pain under control and the nerves to quit firing so intensely. I came home with new meds. By last Friday, I was in huge trouble. I went into a medical drug interaction, withdrawal symptoms from the other nerve drugs I was on. It was awful. By afternoon, I was almost admitted to the hospital. I promised to have someone stay with me for 3 days to avoid hospitalization. It was awful. The shaking, nausea, drowsiness and I couldn't even lift my head. I couldn't see. My migraine was crazy hurting. I thought I might die.
The doctor told me I had to adjust to the meds. It would be so hard to adjust the meds.
is to be expected.
Then, this last week, I have developed a horrible sinus infection, double ear infections and lung infection. Oh joy. So I am still flat in bed.
It scares me that I am on another antibiotic.
In August, I also dealt with a bout of pneumonia and bronchitis. I also dealt with a horrific eye cyst. Which required antibiotics and eye antibiotics.
It's been a crazy crazy two months. It's not over yet. I have testing all next week. I'm praying infection will leave my body. And that life calms down, at least a little. But for now, I lay here and pray.
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